I’ve had several parents come up too me with their stories since last week’s post on my son’s situation. There seems to be a large number of fights and battles with regional service providers like Kinark across the province that manage services for kids with autism too get kids the services they need. It’s important to note that these service providers fall within direct oversight of the Ministry of Children and Youth Services. The Ontario Autism Coalition has been fielding complaints from parents regarding these service providers as well. Too simply state that my son’s situation is an isolated incident would be to undermine the enormity and severity of some of the problems parents are reporting to advocates regarding regional service providers across the province. Kinark has been named one of the top three worst service providers in the province for parental complaints by the Ontario Autism Coalition.
In 2006, Ontario Premier Kathleen Wynne’s spouse Jane Rounthwaite worked as a consultant with Kinark. According to ontariosunshinelist.com there was a spike in 2004 where the total number of employees at Kinark that were paid $100,000 or more reached 29. Prior to when the Ontario Liberals took office in 2003, Kinark only had about 1 – 2 people making over $100,000. When Rounthwaite was hired by Kinark in 2006, the total number of people employed by Kinark making over $100,000 was around 8. In 2015 that number has ballooned to 22 people working for Kinark that are making over $100,000 (click image to enlarge):
There was quite obviously a problem with this organizations management back in 2004 with ballooning overhead costs, in which I would think was the primary reason why the organization was looking for a contractor to “fix” the issue. Somehow, Rounthwaite got the contract. It’s still not clear why Rounthwaite was given that contract. Wynne was the education minister at the time, and Rounthwaite was a principle stakeholder in the contracting company hired by Kinark. To date the public isn’t clear on what Rounthwaite’s involvement with Kinark was. Questions journalists had while investigating Rounthwaite’s involvement with Kinark have been repeatedly blocked by the government, and the issue hasn’t seen the light of day with the ethics commissioner for proper follow up either.
What we are seeing from an advocacy point of view; a steady increase in people employed by Kinark making over $100,000 since Rounthwaite’s involvement, with a lot of complaints coming in regarding the treatment of eligible families for services in which Kinark oversees (full disclosure my family is one of those).
What’s worse right now is that there seems to be a lack of enforcement by the Ministry of Children and Youth Services regarding their own “guidelines”. There seems to be a lack of legislation to hold these regional service providers in line with those guidelines and/or enforcement of these guidelines to ensure that families get the services they need. The most recent issue that has come up, is that those parents who received money for their kids for transitional services while they wait for the new autism program to be implemented are being misled by these service providers in thinking the best option for services is to spend that money with them, instead of properly informing parents of their choices and rights to seek treatment outside of these providers as per ministerial guidelines.
There is a huge push right now in the autism movement to provide all families with immediate funding for services to get the kids what they need now while they wait for the new program too roll out. By providing every family affected now with money to purchase services while they wait, it would be cheaper for the province in the long run, but also put the parents in charge of their kid’s therapies. However there is also a problem that has crept up with that as well outside of many not receiving the money.
The province during its announcement to give families the support they need, upped the amount of money they were giving families for DFO to $10,000 until the new autism program would be in place. It seems like kids over the age of 5 are not receiving the full amount (a proposal was sent to the Ministry of Children and Youth Services to fix the issue yesterday), and some due to administrative issues with regional providers are ineligible to receive anything. Allegations are also surfacing by those that have received the funding that the government is tying their hands on what type of support and intensity of therapy they can receive with this money.
So as we go further down the rabbit hole, there seems to be an upset in the balance of accountability and enforcement where these regional service providers are not providing the services to the kids that need them, misinforming parents, ignoring ministerial guidelines, and what looks to be quite the issue with overhead costs of these non-profit service providers, along with government tying the hands of parents who are looking outside these providers for services with money provided to these families by government until the new program rolls out.
Pile on the fact only a select few got this money to begin with in which that process for eligibility is in the hands of these providers; it becomes a sick and cruel joke on all families and kids affected by this “transition” that need support NOW! All this at the expense of Wynne trying to save a few bucks, while these regional providers run insane overhead with no accountability or enforcement under the Ministry of Children and Youth Services.
The plot thickens. Stay tuned…